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Re: Reply to Craig

From: Craig
Date: 1/30/00
Time: 1:06:46 AM
Remote Name: 165.121.99.97

Comments

Thanks for the feedback. I had another chronic problem 15 years ago called prostayodynia. Just a catch-all term for pelvic pain. It was sort of similar to gerd but at the other end of the "tube". I had this for several years, tried everything - homeopathy for extended periods, antibiotics, 3 types of accupucture etc. etc. Nothing helped at all. I saw a number of very good urologists and they all could only offer drugs and encouragement to "just get used to it". But then I was lucky and met a very open minded research urologist at Stanford. He suggested potential causes including neuro-muscular pattern and how I might explore some of these things. I went to a visceral manipulation person who did a couple of very suble little things and it actually gave me temporary relief. She suggested I try Iyengar yoga, and after experienceing a slight flair up of symptoms, after 2 months, I was symptom free. It blew me away. It was amazing to me that by changing the distribution of chemistry and energy in my body, it would be able to cure my problem, MOst people who have prostatodynia or interstitial cystitis spend a lot of time looking for hidden micro-organisms and other complex physiological causes. The reason I'm telling you this story, is because I learned a lot from this. The main two things I've learned are 1) many chronic pain syndromes can be effectively cured through subtle forms of myo-fascial, visceral, and physical excercises or therapy( even breath work). Also working on emotional and psychological stuff helps also. Even if the underlying cause is some purely "organic" process, it can still help matters to get all of your chemistry mobilized and flowing, and the motility of various body parts improved. And 2), There are a lot of good doctors out there, some of whom can really help you(like the stanford urologist helped me), but most chronic problems are really beyond the scope of medicine ( and often beyond alternative medicine) but I've found the value of really exploring things - and listening to a broad variety of opinions. ( of course you want to temper this because you could also drive yourself nuts with taking in too much contradictory info from too many sources - certainly don't want that!). I'm new to this GERD stuff, and my case is a little unusual. But I'm going to really try the "energy" therapy route first. It takes more patience and more work, but when it is effective - it's the best. I'll probably try that amphigel? (or what ever it is) unless I read that it's nasty. I haven't been able to find any info on it yet(even on the internet). I'll discuss it with my new gastro doc. I haven't met with him yet, but over the phone after my motility study, he was suggesting things like propulsid and reglan - drugs that I'm unwilling to use at this point. Perhaps if I get desperate I will use them. And actually if I had a LES problem, before I took the drugs, I might try the new "heat" proceedure that was mentioned on this site. There's a guy at Stanford( nearby) that originated the proceedure. I haven't read the book you mentioned. I will probably check it out when I'm at the bookstore next. So basically, for lack of better words, I'll try the "energy manipulation" road for now and use drugs as a last resort. I'm taking no drugs currently, not even anti-acids ( of course I appearantly don't have excess acid in the eso. like you might have). I've had this syndrome for 3 months and was taking Prevacid or Prilosec up until 2 weeks ago. I seem to be better now. I learned that Prevacid actually significantly slows down stomach peristalsis and therefore probably esophagus motility also. I think a cause of my problem is poor peristalsis, so taking these drugs for me was probably the worst thing I could do. Sorry for the gargancuan message. I hope there's some useful info in it.


Last changed: January 11, 2008